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Title: Protocol and establishment of a Queensland renal biopsy registry in Australia
Authors: Burke, Joseph Patrick
Aljishi, Manaf
Francis, Leo
Hoy, Wendy
Divi, Dakshinamurthy
Cherian, Roy 
Frazier, Jeremy 
Gobe, Glenda
Gois, Pedro
Govindarajulu, Sridevi 
Huynh, Sonny
Jesudason, Shilpanjali
John, George 
Madhan, Krishan 
Mallett, Andrew
Manickam, Valli
Mutatiri, Clyson 
Ng, Shu-Kay
Thet, Zaw 
Trnka, Peter 
Venuthurupalli, Sree Krishna
Ranganathan, Dwarakanathan 
Issue Date: 2020
Publisher: Biomed Central
Source: Burke JP, Aljishi M, Francis L, Hoy W, Divi D, Cherian R, Frazier J, Gobe G, Gois P, Govindarajulu S, Huynh S, Jesudason S, John G, Madhan K, Mallett A, Manickam V, Mutatiri C, Ng SK, Thet Z, Trnka P, Venuthurupalli SK, Ranganathan D. Protocol and establishment of a Queensland renal biopsy registry in Australia. BMC Nephrol. 2020 Aug 1;21(1):320. doi: 10.1186/s12882-020-01983-7
Journal: BMC nephrology
Abstract: Renal biopsy is often required to obtain information for diagnosis, management and prognosis of kidney disease that can be broadly classified into acute kidney injury (AKI) and chronic kidney disease (CKD). The most common conditions identified on renal biopsy are glomerulonephritis and tubulo-interstitial disorders. There is a paucity of information on management strategies and therapeutic outcomes in AKI and CKD patients. A renal biopsy registry will provide information on biopsy-proven kidney disorders to improve disease understanding and tracking, healthcare planning, patient care and outcomes. A registry of patients, that includes biopsy-proven kidney disease, was established through the collaboration of nephrologists from Queensland Hospital and Health Services and pathologists from Pathology Queensland services. The registry is in keeping with directions of the Advancing Kidney Care 2026 Collaborative, established in September 2018 as a Queensland Health initiative. Phase 1 of the registry entailed retrospective acquisition of data from all adult native kidney biopsies performed in Queensland, Australia, from 2002 to 2018. Data were also linked with the existing CKD.QLD patient registry. From 2019 onwards, phase 2 of the registry involves prospective collection of all incident consenting patients referred to Queensland public hospitals and having a renal biopsy. Annual reports on patient outcomes will be generated and disseminated. Establishment of the Queensland Renal Biopsy Registry (QRBR) aims to provide a profile of patients with biopsy-proven kidney disease that will lead to better understanding of clinico-pathological association and facilitate future research. It is expected to improve patient care and outcomes.
DOI: 10.1186/s12882-020-01983-7
Keywords: Kidney diseases;Nephrologists;Renal biopsy;Registries
Type: Article
Appears in Sites:Gold Coast Health Publications

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