What cancer survivorship services do young people want?

Abstract

Aim To identify experiences of young cancer survivors and their perception of optimal components of survivorship care and wellness programs. Background Most young people survive their cancer diagnosis and are then at risk for long-term negative consequences. Survivorship care is important, but there is little evidence to inform optimal service models. Methods Semi-structured interviews were conducted with adolescents and young adults (15-24 years). Content analysis was used to identify themes. Results Sixteen young people participated. Three major themes are described: concerns after treatment; after treatment services; and perceptions of a wellness survivorship program. Within each theme, further subthemes highlighted the difficulties young people face when trying to return to normal life. Fear of cancer recurrence and a need for greater coordination of support and services were the highest concerns. Conclusions: Findings highlight the need for an individualised approach to survivorship care that engages and empowers young people as partners in their own healthcare.research; tables/charts. Journal Subset: Australia & New Zealand; Double Blind Peer Reviewed; Editorial Board Reviewed; Nursing; Peer Reviewed. <br />