Family-centred care in cystic fibrosis: a pilot study in North Queensland, Australia

Abstract

Aims: The aims were to: (i) examine perceptions of family-centred care of parents of children with cystic fibrosis and healthcare professionals who care for them; (ii) test design and tools in a regional population.; Design: Quantitative pilot study of existing questionnaire.; Methods: The methods involved were comparative, cross-sectional survey of parents of children with cystic fibrosis and health staff in North Queensland, using "Perceptions of Family Centered Care - Parent" and "Perceptions of Family Centered Care - Staff" questionnaires; and descriptive study of tools.; Results: Eighteen staff, 14 parents (78%, 61%); using Mann-Whitney U, showed no significant differences in scores in categories: 'support' 'respect', 'collaboration'. Comments about suitability of questionnaires varied, but were largely positive.eCollection. Cited Medium: Print. NLM ISO Abbr: Nurs Open. PubMed Central ID: PMC5500987. Linked References: J Clin Nurs. 2010 Sep;19(17-18):2629-38. (PMID: 20920083); J Adv Nurs. 2011 May;67(5):1152-62. (PMID: 21272055); J Clin Nurs. 2006 Oct;15(10):1317-23. (PMID: 16968436); Nurs Open. 2017 May 11;4(3):168-173. (PMID: 28694981); Cochrane Database Syst Rev. 2012 Oct 17;10:CD004811. (PMID: 23076908); Ann Intern Med. 2014 Aug 19;161(4):233-41. (PMID: 25133359); Pediatr Nurs. 2000 Nov-Dec;26(6):625-32. (PMID: 12026366); Pediatr Nurs. 2004 May-Jun;30(3):189-97. (PMID: 15311642); J Pediatr Nurs. 2015 Jan-Feb;30(1):143-59. (PMID: 25458112); Acad Pediatr. 2011 Mar-Apr;11(2):136-43. (PMID: 21396616); Qual Health Res. 2010 Mar;20(3):352-64. (PMID: 19955225). Linking ISSN: 20541058. Subset: PubMed not MEDLINE; Date of Electronic Publication: 2017 May 11. ; Original Imprints: Publication: [Hoboken, NJ] : John Wiley & Sons, Inc., [2014]- <br />