Transition and survivorship after cancer treatment at the Queensland Children’s Hospital: The voice of families and health professionals

Abstract

ObjectivesA nurse-led Oncology Transition Clinic (OTC) was established to discharge children and young people after cancer treatment in Queensland. The “Oncology Treatment Summary and Ongoing Screening Recommendations” guided ongoing care based on patient risks and best evidence. This project aimed to assess the experiences of the discharge process and the uptake by families and health professionals of ongoing care recommendations.MethodsParticipants of the OTC between January 2023 and April 2024 were invited to complete an online survey. Data was analysed descriptively and thematically.ResultsThe 10 health professionals responding found the Summary useful to manage ongoing care. Barriers to screening included patient compliance and access to health professionals in regional areas. Of the 57 families responding to the survey, 56% felt supported during transition and 40% adhered to the screening schedule. Barriers included access to primary care, GP knowledge, work or study commitments, and lack of awareness. Confidence was increased with a competent GP and information provided by the OTC. 26% of families would prefer ongoing support with the tertiary centre and 44% requested screening reminders.ConclusionThe OTC supported families and GPs in the transition to primary care. However, managing family’s expectations and anxiety could be improved through early introduction of transition models of care and education for targeted GPs. Consumers requested annual check-ins with specialised survivorship services at the tertiary centre, screening reminders and improved GP education. Implications for Nursing PracticeCommunication regarding survivorship care should commence at diagnosis. Consumers requested annual check-ins with specialised survivorship services at the tertiary centre, screening reminders and improved GP education.